Tuesday, July 22, 2014

JULY UPDATE...MOVING ON

July is almost over already..hard to believe it. We had such a long winter, I am enjoying the warmth so much. Not the humidity mind you, but the warmth.  In all the crazy goings on with my sister's illness I got a  cellphone call while she was in ICU..sooo unexpected.I almost did not answer it. I went out in the hallway and answered it. I could hardly believe it. A manager of an apartment complex was calling about an apartment that I had been on a waiting list for a long long time.  Did I still need an apartment?? I spoke up and said YES, trying to speed up the conversation and get back to the ICU. Sis was completely out of it with her blood being totally out of balance so I had to be there. She said she would call me back, that one was now available but there was some glitches that would have to be worked out. GLITCHES??? I could only imagine. 
I left the hospital and waited for her call. It seemed that I had to rent the apartment by July 1st or lose it to someone else. All the paperwork, deposits and etc. had to be signed by July 1st. That only gave me 4 DAYS to get things together. In the meantime I had to get Sis back home from the hosp and settled and then run like crazy to get all the other things in order. It was hot on June 29, I sat in the office of the manager for 4 longggg hours..  Soo many interruptions made it hard for her to finish my paperwork. Everything had to be done so fast. I got the keys on JULY 1st but the place was still being cleaned and touched up. Seems the woman who lived there was there for 24 years and so they had to completely clean and renew all the carpets and flooring and etc..The manager told me that all the tenants were jealous of my brand new place. I was happy..nothing OLD about it. So I began moving some things over and then  
OUR POWER WENT OFF AT HOME FOR FOUR LONG HOT DAYS. 

I used the apartment fridge for storage for most of our frozen food. The apartment is in another town 15 minutes away. We stayed there in the day time with a fan running and rested up from the hot nights at home. The whole thing was like a crazy story that was hard to believe. Sis was weak but the apartment was on the first floor so she could just walk right in .. NO STEPS.. we both were happy about that. Waiting for the oil base wall paint smell to go away, I moved load after load of my stuff there in our car. Very time consuming and tiring. As I unpacked,  I was reminded of how many of my things were from my friends and family. We do cherish our memories and I have made many.
I brought in a  camping table, sure has come in handy, I got phone calls about what things I would need or want. I was shocked that so many had items they no longer wanted. In no time at all I would have an apartment full.  Stay tuned for part 2!!!



Wednesday, June 25, 2014

CRAZY CRAZY CRAZY!!!!




I find I  am once again in caregiver mode. I still cannot believe how crazy things have been here. My sister who is younger than me by 6 years has been so ill as I mentioned before. She has been in hospital for over 7 days now. I have been dealing with at least 10 doctors, including specialists, interns and therapists. Exhausting for me and for her. Seems that her meds are so strong they really are making her out of control. 

MY ADVICE TO YOU ALL:  PREDISONE IS NOTHING TO MESS WITH. Some people will have a hard time with it.

It may do the job but BOY is it hard on your body. It messes with you big time. Sis has had hallucinations, enhanced headaches, ringing in her ears, sensitivity to light and sound and all sorts of new things keep popping up. I asked the doctors and they all say that there are no other drugs that she can take and to get better she HAS TO stay on this regime. It may take a long time... WOW.. all of the sudden..we are faced with wheelchairs and canes and thank goodness we kept all of mother's helpers. I have had to rearrange things so that life can be easier for Sis to get around. Landing in the ICU the past few days has been hard. She knows who I am but other than that knows not much. Her blood levels so bad she can't remember her own birthday or anything. She is stable but still so out of it. I remain hopeful that she can get situated so that she can return home soon. ALL PRAYERS appreciated with great THANKS!!

Tuesday, June 10, 2014

IT'S JUNE ALREADY..

Sorry it has been awhile since my last update...
                                                 

                                                


June started a little crazy for us here. Doctor's visits, hospital tests and changes in every day living. Sister's condition went from simple to very complicated after many tests and consultations. Seems her immune system is compromised and now has to be reset with powerful drugs. I questioned the diagnosis, but with 4 doctor's opinions, and they are specialists, I agreed with their findings. Every day is a challenge, new side effects popping up. I have a watchful eye on her. This will go on for months so it keeps us busy with mapping out appointments on the calendar. I had a flash back yesterday to when I had to keep track of my mother's schedule with her dialysis, how hectic that was and how similar this illness seems to be. I find myself back in caregiver mode again, something I never thought would happen. I am glad at least I have the experience to deal with such an illness..
                                           

The weather warmed up and that was a blessing. It was time to put in the AC and stay cool. I purchased a very small one for just one room. Getting it up 14 stairs was no easy task, but one by one I did it. Securing it was another problem though. Old house and old windows..everything had to be re-enforced to make sure it did not fall out into our driveway. What in the world did they do in the OLD OLD days to keep cool without a fan I have no idea? They were tougher than me that's for sure.   This summer has been a cooler one than last year, easier to do chores and outside work is okay by me.

My tablet was not working, after three months using it, it decided it wanted to type words for me all the time and not charge when it said it was charging. I guess it had a mind of it's own. I called the company and paid the shipping to have them send me a new one. I got a call one afternoon ,after I sent it back, from OKLAHOMA...they apologized that they did not have the same model and would I like to try a larger size. YES, yes I would!! So they sent me a 10 inch size. Has been wonderful...comes in handy while sitting waiting for Sis in so many places. I still use the laptop every day, but boy I do love the new technology so much.  Hard to believe only 5 years ago when I had only a large desktop and monitor and no way to leave the room with it.  Love the freedom. 
Speaking of freedom..in case I don't get back here hope you all have a 
it will be here before you know it.