CRAZY CRAZY CRAZY!!!!

I find I  am once again in caregiver mode. I still cannot believe how crazy things have been here. My sister who is younger than me by 6 years has been so ill as I mentioned before. She has been in hospital for over 7 days now. I have been dealing with at least 10 doctors, including specialists, interns and therapists. Exhausting for me and for her. Seems that her meds are so strong they really are making her out of control. 

MY ADVICE TO YOU ALL:  PREDISONE IS NOTHING TO MESS WITH. Some people will have a hard time with it.

It may do the job but BOY is it hard on your body. It messes with you big time. Sis has had hallucinations, enhanced headaches, ringing in her ears, sensitivity to light and sound and all sorts of new things keep popping up. I asked the doctors and they all say that there are no other drugs that she can take and to get better she HAS TO stay on this regime. It may take a long time... WOW.. all of the sudden..we are faced with wheelchairs and canes and thank goodness we kept all of mother's helpers. I have had to rearrange things so that life can be easier for Sis to get around. Landing in the ICU the past few days has been hard. She knows who I am but other than that knows not much. Her blood levels so bad she can't remember her own birthday or anything. She is stable but still so out of it. I remain hopeful that she can get situated so that she can return home soon. ALL PRAYERS appreciated with great THANKS!!

MY WORLD WAS SPINNING..

Imagine yourself on a small boat drifting in a big ocean with no oars to row with. You see the skies darkening and you know something bad is coming but have no way to get away from there fast enough. The waters go from calm to violently rocking and swaying quickly.

It is hard to just stay in the boat and not fall out. 

This is sort of what happened to me this past week. I knew what was coming, but had no way to stop it. Try as I might, it kept getting worse. This feeling of loss of control as the room just went from a small rocking motion to really bad. I have had it before on several occasions. I  knew what to do, but this time I could not help myself like I wanted to. As the day went on the feeling got worse instead of better. I closed my eyes and that helped. I did not move and that helped. It just did not relieve the problem. It is worse than anything to lose control of ones balance and fight to try to get it back and lose the battle.

VERTIGO.. 

"Benign paroxysmal positional vertigo (BPPV) is one of the most common causes of vertigo — the sudden sensation that you're spinning or that the inside of your head is spinning.

Benign paroxysmal positional vertigo is characterized by brief episodes of mild to intense dizziness. Symptoms of benign paroxysmal positional vertigo are triggered by specific changes in the position of your head, such as tipping your head up or down, and by lying down, turning over or sitting up in bed. You may also feel out of balance when standing or walking."

My case was the room moving and when my eyes tried to focus they twitched and I felt even more out of it. You cannot drink or eat, the waves of nausea come over you so you wait for them to pass. If you have ever experienced it you will not ever want to again.  I was perfectly fine only minutes before this episode, so all of the sudden you feel like a truck has run over you. 

Why it got so bad, why it started..I didn't know. As it got worse several strange things happened. I stood up, which was hard enough to do, and then had a tingling sensation from the top of my head to my toes. THAT was new, I had never had that before. The doctors later said they had no idea why I had that, but they had to check it out. 

CHECK they did..I spent SEVEN HOURS in the ER, being prodded and poked by people talking to me whom I could not see. If I opened my eyes it was worse so I didn't. It gave me a whole new perspective and appreciation for the gift of sight. 

MORE TO COME....