CRAZY CRAZY CRAZY!!!!

I find I  am once again in caregiver mode. I still cannot believe how crazy things have been here. My sister who is younger than me by 6 years has been so ill as I mentioned before. She has been in hospital for over 7 days now. I have been dealing with at least 10 doctors, including specialists, interns and therapists. Exhausting for me and for her. Seems that her meds are so strong they really are making her out of control. 

MY ADVICE TO YOU ALL:  PREDISONE IS NOTHING TO MESS WITH. Some people will have a hard time with it.

It may do the job but BOY is it hard on your body. It messes with you big time. Sis has had hallucinations, enhanced headaches, ringing in her ears, sensitivity to light and sound and all sorts of new things keep popping up. I asked the doctors and they all say that there are no other drugs that she can take and to get better she HAS TO stay on this regime. It may take a long time... WOW.. all of the sudden..we are faced with wheelchairs and canes and thank goodness we kept all of mother's helpers. I have had to rearrange things so that life can be easier for Sis to get around. Landing in the ICU the past few days has been hard. She knows who I am but other than that knows not much. Her blood levels so bad she can't remember her own birthday or anything. She is stable but still so out of it. I remain hopeful that she can get situated so that she can return home soon. ALL PRAYERS appreciated with great THANKS!!

IT'S JUNE ALREADY..

Sorry it has been awhile since my last update...
                                                 

                                                

June started a little crazy for us here. Doctor's visits, hospital tests and changes in every day living. Sister's condition went from simple to very complicated after many tests and consultations. Seems her immune system is compromised and now has to be reset with powerful drugs. I questioned the diagnosis, but with 4 doctor's opinions, and they are specialists, I agreed with their findings. Every day is a challenge, new side effects popping up. I have a watchful eye on her. This will go on for months so it keeps us busy with mapping out appointments on the calendar. I had a flash back yesterday to when I had to keep track of my mother's schedule with her dialysis, how hectic that was and how similar this illness seems to be. I find myself back in caregiver mode again, something I never thought would happen. I am glad at least I have the experience to deal with such an illness..
                                           

The weather warmed up and that was a blessing. It was time to put in the AC and stay cool. I purchased a very small one for just one room. Getting it up 14 stairs was no easy task, but one by one I did it. Securing it was another problem though. Old house and old windows..everything had to be re-enforced to make sure it did not fall out into our driveway. What in the world did they do in the OLD OLD days to keep cool without a fan I have no idea? They were tougher than me that's for sure.   This summer has been a cooler one than last year, easier to do chores and outside work is okay by me.

My tablet was not working, after three months using it, it decided it wanted to type words for me all the time and not charge when it said it was charging. I guess it had a mind of it's own. I called the company and paid the shipping to have them send me a new one. I got a call one afternoon ,after I sent it back, from OKLAHOMA...they apologized that they did not have the same model and would I like to try a larger size. YES, yes I would!! So they sent me a 10 inch size. Has been wonderful...comes in handy while sitting waiting for Sis in so many places. I still use the laptop every day, but boy I do love the new technology so much.  Hard to believe only 5 years ago when I had only a large desktop and monitor and no way to leave the room with it.  Love the freedom. 
Speaking of freedom..in case I don't get back here hope you all have a 

it will be here before you know it.